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#mcas

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Yogi Jaeger

@daveliepmann

Yes. True. But no reason to minimize post-vaccine "alarmism." I have #MCAS #MECFS. I can sing you a song about what this means for *millions* of people on this planet right now, and about the purely economic reasons for which we are largely ignored. Taking us seriously would simply crash every single health system on this planet. Humanity has simply given up on this problem.

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Barbara Wimmer - shroombab

Da ich an chronischen Krankheiten leide, versuche ich (neben Medikamenten zur Stabilisierung dieser) auch:

Radikale Akzeptanz - des Verlustes meines bisherigen Lebens.

Radikale Akzeptanz kann als die Fähigkeit definiert werden, Situationen zu akzeptieren, die sich deiner Kontrolle entziehen, ohne sie zu bewerten, was wiederum das durch sie verursachte Leiden verringert.

Dadurch bin ich zumindest psychisch stabil. Und Lebensfreude trotz allem kein Fremdwort.

#postcovid #mecfs #mcas#pots

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Barbara Wimmer - shroombab

Ich habe immer wieder mal so Phasen, in denen es mir wirklich schwer fällt, bei mir zu bleiben und nicht in pure Angst zu verfallen, was meine Zukunft und Existenz auf diesem Planeten betrifft.

Eine schwere Erkrankung zu haben, für die es keine Heilung und wenig Behandlung gibt, ist da wirklich kein Pluspunkt.

Trotz allem kristallisiert sich zumindest immer mehr raus, was ich eigentlich gern in dieser Zukunft noch machen würde. Also ich hab schon Hoffnung. :)

#postcovid#mecfs#mcas
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Broadwaybabyto

I don’t want to link to this article as it’s irresponsible but I’m begging journalists to stop cosplaying “normal” at the expense of people’s health

Don’t make a case for social drinking. Ask WHY folks aren’t drinking

MCAS is a common comorbid with Long Covid & can cause severe alcohol intolerance.

If you’re unfamiliar with MCAS, I wrote an introduction article linked 👇🏼

You don’t have to have alcohol intolerance though it is a common symptom. Mast cells can impact any part of your body & you can be allergic to something one day and not the next!

It’s a beast of a disease & hard to diagnose.

disabledginger.com/p/when-your

Screenshot from Jacobin. There’s a photo of raised beer glasses being clinked together. Text reads The Case for Social Drinking BY RYAN ZICKGRAF Americans are trading bar culture for wellness apps and mocktails. But despite alcohol's many shortcomings, our national sobering up is not a simple cause for celebration. We're also losing social spaces and traditions in an increasingly alienated society.
#mcas#longcovid#mastcells
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Nyx Mir

I am one of six winners of the most recent Homiens Art Prize for one of my @illmarks pieces!

I’m deeply honored and thankful, this is the first award I’ve received as an adult for my visual art (vs collaborative design).

I hope that this raises more compassion & allyship for people with post-viral illness, & can be a representation win for our community as a whole—it’s so easy to feel invisible as a disabled & Covid-conscious person these days.

homiens.com/the-homiens-art-pr

#longcovid#mecfs#mcas
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Broadwaybabyto

To my fellow chronically ill people… if you’re flaring right now please don’t discount the impact of the news cycle on your nervous system.

We need to stay informed, but take breaks. Find joy wherever you can. Lean on one another.

Save your strength for the long fight ahead.

I wrote this article as part of my series on MCAS, but many of the tips within it apply to our current situation as well.

We need to give ourselves grace when we can’t identify a trigger. Accept that sometimes we will flare and never know the reason why.

The best we can do is rest, recover, and try not to be too hard on ourselves. Try to learn to let go.

disabledginger.com/p/learning-

The Disabled Ginger · Learning to Let Go - How To Accept Your Chronic IllnessBy Broadwaybabyto
#chronicillness#spoonie#mcas
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Brett Terpstra

#introduction

Just updating this for my new account on hachyderm.io.

He/him

I'm a developer of Mac apps (Marked 2, Bunch, nvALT/nvUltra) as well as a hundred+ utilities (na, doing, howzit, SearchLink…). I blog at brettterpstra.com, podcast on Overtired, and write and develop at Oracle.

I love cats, dogs, and hiking. I'm #adhd and #bipolar, with a bit of the ol’ #cptsd, and am very open about mental health. I'm partners with an #autistic person and we love finding ways to make our neurodivergences work together.

Also #pots #mcas #hsd #dysautonomia just to round out the mix. An alphabet soup of disorders — it’s what makes me a special boy.

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Christine 🌼

Mir geht's endlich besser!
'Off label use' low dose #Abilify hilft etwa 70% der ME/CFS-Erkrankten.
Mir auch!
Nehme es erst wenige Tage und diese leichte Besserung bewirkt schon so viel, dass mir nach Grinsen ist und dass ich mir gestern einen knallgelben Schirm gekauft hab 🌞.
Und mein Hausarzt wird zukünftig eine Fatigue-Sprechstunde anbieten. Er bildet sich fort zu #mecfs, #mcas etc.
Ich bin ein Glückspilz. 🥳

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illmarks

2025_1_20 environmental allergies triggered (MCAS)

MCAS, or mast cell activation syndrome, is a common post-viral illness which can give severe, dangerous allergic reactions even to people who had no allergies previously, like me.

A few days ago I tried to clean out my old apartment, which we’d removed the air purifiers from, and immediately broke out in rashes and hives. I was mentally struggling and afraid. When I remembered I had a KN95 mask in the car, it helped a lot, but MCAS is a deeply terrifying and hard to understand condition.

There are resources in my about page about MCAS, but here are a few:

Broadwaybabyto’s “Welcome Guide” to MCAS:

– When You’re Allergic to Everything and Nothing… That’s MCAS (MCAS pt 1)

– MCAS and Histamine – Diet isn’t the ONLY Answer(MCAS pt 2)

And two other blogs dedicated to Mast Cell condition information:

– Mast Attack (Blog, on Mast Cell Conditions)

– Jodie Ettenberg’s Mast Cell Activation Syndrome Resources (Blog, on Mast Cell Conditions)

https://www.illmarks.com/2025_1_20-environmental-allergies-triggered-mcas/

the figure is surrounded by tons and tons of purple-pink smoke fumes. their legs are protected by skin-tight compression leggings, but their face chest and feet have broken out in teal hatched rashes and neon green hives. many of the gumes concentrate around the nose, but inhaled and causing the suffering.
#bodyHorror#chronicIllness#longcovid
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